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Febrile Convulsions – Would you know what to do?

Febrile Convulsions – Would you know what to do?

baby in cotWould you know what to do if you woke to find your baby having a seizure in the night?  Stephanie did not and so when she found her eight month old daughter convulsing in her cot she was terrified. Here Stephanie passes on her knowledge in the hope that no one may ever needs it but better to be safe than sorry.

(Note: This piece features Stephanie’s experience and is not intended as medical advice. We urge you to consult your doctor or medical authority for all issues regarding your child’s health.)

It was middle of the night, my husband was working a night shift and my daughter was sleeping in her cot placed next to my bed.  She had been a bit poorly that day but it was just a cold and as she was still feeding really well I wasn’t concerned.  At around 3 am I settled her back to sleep after a night feed, turned off the light and was just starting to drift off myself when I became aware of a strange noise coming from the cot.

Reaching my hand down into the cot I could tell something was wrong.  I put the light on quickly and saw that my daughter was having some kind of fit.  I had no idea what to do.  I wondered if it was meningitis or epilepsy and tried to remember what I knew but nothing useful came to mind.  The overwhelming feeling of total helplessness and panic was terrible, I even wondered if my baby girl was going to die.  I held her in my arms as she continued to have convulsions and dialed 999.

I can’t speak more highly of the service I received from the NHS that night.  The ambulance arrived in fifteen minutes and once they realised I was alone they woke my neighbour so she could watch my four year old son.  The seizure ended finally and we were rushed to the hospital.   After several checks we were told she’d had a febrile convulsion, a type of seizure that is triggered by a sharp rise in temperature, very common in young children and thankfully usually harmless.

A few weeks later my daughter suffered a second fit.  Again it seemed to come from nowhere.  She was fine one minute and fitting the next.  Watching your child having a seizure is a very distressing experience but the fear factor was greatly reduced simply by knowing what to do.

ear thermometer

The second time round I knew to turn her on her side, to strip her of extra clothing to keep her cool,  to make sure she stayed safe while she was having convulsions and to dial 999.   After her second seizure I became obsessed with prevention.  I purchased an ear thermometer and checked her temperature regularly and I became very quick to administer Calpol if I felt she was getting to hot.  I took her out of her grow bag and gave her blankets instead so I could add and remove layers  as required and thankfully we haven’t had another seizure since.

I hope this is something that you never experience but if you do then knowing what to do will hopefully reduce the fear factor and the good news is that most children grow out of febrile convulsions. As for my daughter, since then we have managed to keep her out of the hospital, well except for the time she decided to take a nose dive out of her cot but that  is another story!

Stephanie blogs at Storybramble where she posts free audio stories and poems for children with follow on creative activities.  She is a trained actor, qualified drama teacher and very unqualified mother of her two children aged five and two. Find her on TwitterFacebook and Google +.

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Jazz

Tuesday 10th of September 2013

Hi, my little boy had one a few nights ago, he called out for me on monitor and when I went up he started having one and I was absolutely terrified I was losing him, I had never heard of them before. He has a pull out trundle bed with his so hubby has been sleeping in there as we still have younger one in with us who I need to be with. I'm just so scared he will have another and I won't hear him and hubby sleeps so deeply. I know it's unlikely and fever related and he doesn't have a fever any more but how do you not worry every night? Since he had it I get him to fall asleep on sofa and take up when we are going to bed. Whenever I'm near his room it's in my head. It's like a nightmare over and over. Just need to share but any suggestions or ideas to lessen my worries would be great.

Courtney

Thursday 25th of July 2013

My story is so similar to yours stephanie!!! My lil girl Matilda has had 2 febrile seizures now. She stopped breathing altogether (they thought she had an obstruction in her airways of foam)... does anyone have any advice as to how to feel safe putting their babies back in their own rooms? Matilda has been sleeping with us ever since her first seizure 6 months ago, we are so sleep deprived by it, but id rather never sleep again than have her having a seizure & me not waking for it... Any advice would be fantastic....

Carol

Tuesday 18th of June 2013

We've just had our first febrile convulsion and should get the test results back this afternoon. The most scariest thing I've ever seen, but I knew straight away to call for an ambulance and barked orders at my OH. I just put her on her left side and started stripping from the bottom up. She was foaming so much I couldn't get her jammies over her head, but got the arms off. Best tip if you don't have a mobile signal in the UK is not to dial 999, but 112 (same service). It not only will it find you a signal, but sends a GPS link to the 999 service to tell them where you are - great if you have no idea or are on holiday. Probably works in other countries too

Emma Nutrition

Tuesday 4th of June 2013

Great post, I lost my snobbery around giving drugs once I learnt about febrile convulsions! Rather a little calpol to prevent than have a febrile convulsion. Not that all can be prevented but it is very good to know the risks of a fever.

Stephanie

Thursday 23rd of May 2013

We were advised to always call for an ambulance, but knowing to keep her cool and safe helps too.

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