Special Needs Round-up

Welcome to the first of my monthly “Special Needs” round ups.  I am Alex from Doing it All for Aleyna where I blog about my haphazard life with my little girl with Global Development Delay & Microcephaly.  Every third Saturday of the month I will be summing up some of my favourite posts from parents of children with additional needs.  Not everyone is comfortable with the term “special needs”.  I don’t have a problem with it, and for some people who have not been able to get a diagnosis, it helps.

The friends I have made in the blogging community are fabulous, especially those with “special” children.  There is always someone to talk to, someone to rant to, and someone to laugh with.  Don’t forget to join the ever-growing BritMums group.

So without further ado, I would like to highlight a handful of my favourite posts from the last month.

Claire from A Boy with Aspergers is a prolific blogger, not just in the special needs community.  When she writes about “Little Man”, her gorgeous boy with Aspergers, she writes with knowledge, diplomacy and honesty.  I try not to think about the future too much, however it is one of those inevitabilities and it was Claire’s post, Aspergers worrying about the future, that really hit home with me.

Dave’s (almost) Daily Drivel is a blog written by a committed Dad to a little boy with developmental delay and epilepsy.  Dave’s wicked sense of humour always makes me smile yet he also writes straight from the heart, reaching out to the community to see him through. Dave’s recent post, Decisions, is a true plea for advice and one of the reasons I included it here was in the hope that more of the community would pop over there and give him a bit of love!

Scottish Mum’s candid take on life with her children often sends shivers down my spine.  She writes beautifully, she is never afraid to hold back and is wise beyond belief.  I often find myself popping over to Scottish Mum’s blog to see what she would say on a matter.  Her recent post “Talking to the parents or teachers of a badly behaved child” was one of those very posts. It is written with such clarity and I really hope it makes a difference to some parents of “neurotypicals”.

Wendy from the Savette Gazette is incredible.  She has 4 children, 3 of whom have additional needs.  Wendy has good days and bad days and it is wonderful when she posts about such days as she gets a lot of love in her comments.  Sometimes I do find myself wondering how on earth she manages it.  She is amazing.  But what happens if Wendy gets ill?  Well her latest post “The carer now needs care” addresses just this.  And with a lot of dignity.

Oh Mammy has a beautiful looking blog.  One of her children is on the autistic spectrum and she has a page on her blog dedicated to autism, entitled What is Autism? which is brilliant.  In her recent post, Oh Mammy talks about the general public’s “fear” of disability.  I love this extract from the post; “One of the things that I hope this blog does, in my own daft way, is to raise awareness about what life is like living with disability, or rather parenting an autistic child.Through sharing experiences we can learn and empathise with other parents out there”.  I honestly cannot think of a better way of putting it.

Walking with Angels is a Mum to 4 wonderful girls.  Beautiful Livvy lost her battle with Retts Syndrome in 2008.  Heartbreaking.  I felt compelled to include this brave lady’s recent post “One at a Time” which focuses on bringing about change to the hideousness of children dying due to their geographics. Making a difference, one at a time.

I was so please to see V from Tiddler on the Loose has come back to blogging after a short spell away.  Her posts are sometimes raw, stripped back, her emotions visible on the page.  Tiddler is now 13.5 months old and still without diagnosis and in her latest post, A Tiddler Update, V talks frankly about the frustration of not having a diagnosis, especially when faced with the “system”.

It would be wonderful to hear from you with any posts you have read, or even better, posts of your own.  So fish them out and sign up to the linky below.

See you on 18th February.

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  1. 21 January 2012 / 22:40

    This is a great idea. I need to set aside some time to check out the posts you’ve linked now 🙂 I too, don’t mind the term special needs or talking to people openly about what my son ‘has’ (aspergers). I feel it helps others to understand and more awareness is definitely needed.

    There are times when knowing others experience what I do helps (reading about it) and other times I find it all so overwhelming and I begin to feel I can’t cope when I am reminded of the entirety of it – one day at time is what I can handle most of the time!

    I just don’t know how we do it sometimes, but blogging and doing what we/I love definitely helps.

    Thanks for this post.


    • 23 January 2012 / 12:59

      Thanks for your comment Amelia. I am so pleased that blogging is helping you through. I sometimes get dark days and I now know where to turn xxx

  2. 22 January 2012 / 13:44

    I like the term special needs as it lets everyone know there are issues without saying what they are exactly. There are people who deserve to know and people who don’t. The boys also don’t want everyone to know, so it can be hard to know how to term it. Thank you very much for the mention this week x

    • 23 January 2012 / 13:00

      You are so very welcome. I absolutely love your blog and the way you tackle issues. You are brilliant xxx

  3. 22 January 2012 / 16:58

    Hello there
    I follow Oh Mammy and she posted the link to this site. I am only just discovering how huge the blogging community is! It’s great! 🙂
    Best wishes

    • 23 January 2012 / 13:02

      Welcome to Britmums and also to the blogging world Di. It is a lovely community and although we may not always agree on subjects surrounding parenting etc (who does?), the support during tough times is phenomenal. xxx

  4. 23 January 2012 / 09:00

    My daughter is struggling with my grandson at the moment, because he has so many issues there is no one group to help him, no one place to take him, no one place he fits in….and it hurts me to watch her struggling.
    Up till now his multiple food allergies have been the biggest issue (or worry) but that is being overtaken by other more pressing issues the now
    Gonna go check some of these out and join up to their updates.

    • 23 January 2012 / 13:04

      Dear Elaine. Thank you for your comment. I know my Mum struggles sometimes too. She finds the upsetting times quite hard to see me go through but just knowing she is there and understanding, and more importantly, accepting Aleyna’s problems helps hugely xxx

  5. 23 January 2012 / 12:11

    What a fantastic monthly blog idea, to pull all those people together that have Special Needs issues within their family. It is always great to find places like this where everyone can chat, support, advise and share. I will certainly be checking in regularly.

    • 23 January 2012 / 13:05

      Thanks Lynsey, we look forward to seeing you more often and also very excited about meeting you and some of the others at BritMums Live! 2012 xxx

  6. 23 January 2012 / 16:50

    Thank you so much for mentioning me in the round up and the lovely things you said about me. Its great to read the other blogs as well – there are without a doubt some great special needs blogs- thank you wendy xx

    • 24 January 2012 / 13:11

      Thanks Wendy, it wouldn’t have seemed right not incuding you! Looking forward to seeing you again soon xx

  7. 23 January 2012 / 20:54

    Hi all, Thank you so much for including me in this. I don’t get the opportunity to network much and I’m really touched to be included in this. It really helps us all connect through our various experiences and to share our stories.

    Much love. xx

    • 24 January 2012 / 13:13

      Much love to you too. I love your blog and it will be great to see you around here more often! xx

  8. 23 January 2012 / 21:09

    Oh my goodness! I have just seen this… thanks so much for including me.

    Look forward to checking the other blogs out too…

    • 24 January 2012 / 13:14

      Thanks V, great to have you back xxx